The Jordan Reid Trust

Raising awareness of children with AT/RT cancer

Jordan's Story

Jordan is a lively 3 year old boy has been struck down with Childhood Central Nervous System ATypical Teratoid / Rhabdoid Tumour. He has had a brain tumour removed and underwent chemotherapy and radiotherapy but still is as bright as a shiny new penny.

When Jordan was diagnosed in 2016 he was found to have a major tumour on his brain, which was removed. Now three years old, he’s had many operations since then and has also had a tracheotomy, so it’s hard for him to communicate about what he needs. He can’t swallow or eat or drink, so he is fed through a peg in his stomach.

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What is AT/RT?

A rhabdoid tumour is a rare childhood cancer that can start in the brain, spine, kidneys or other parts of the body.
There are 3 main types of rhabdoid tumours, grouped together by the locations in which they originate:

1. Atypical teratoid / rhabdoid tumours (AT/RT) – these affect the brain and spinal cord (central nervous system).
2. Malignant renal rhabdoid tumours (MRT) – these occur in the kidney (renal).
3. Extra renal rhabdoid tumours (ERRT) – these occur elsewhere in the body, such as in the liver, lungs and skin.

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Model Railway

Soon after Jordan was diagnosed, his grandfather,  Kevan,  began working on what he affectionately refers to as his ‘garden project’ determined to give Jordan a haven to play in. “Their granny and I give both children as much as we can, taking them away for a few days every month, but we wanted somewhere for them here too, “I wanted somewhere for Jordan to run around and play and enjoy himself. He needs fun, and I needed to do something,” Kevan adds.

So Kevan came up with a plan to build a model railway, born from his desire to give something back to the hospital that does so much for his tiny grandson – and all the other children like him. “I’m a member of Sheffield Model Railway Society and I got to thinking about how I could use this interest to create something that could help Jordan, and the hospital.”

Kevan has started work on a 16ft by 8ft model railway which he plans to tour around major UK model railway exhibitions and events when it is finished, with donations being split between Jordan and the hospital.

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Model railway for Jordan

What an amazing idea ❤️

Gepostet von BBC Radio Sheffield am Freitag, 19. Januar 2018

Fundraising for Jordan

Jordan’s grandparents have set up a fundraising fund for Jordan’s Bucket list, in order to give him the best of life possible.

They have attended as many fairs and galas as possible to raise awareness of Jordan’s type of cancer but also raise funds for Jordan’s bucket list. Jordan’s granny, Debra, works tirelessly on organising a variety of projects and tombolas and her thoughts are never far from Jordan and his sister Abi.

Find out how you can help out. Every little donation will be greatly appreciated.

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Our Jordan Reid Trust Facebook Page

Visit our Facebook page for the latest posts, events, photos, videos  about Jordan’s progress, fun trips and fundraising efforts.

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Our Model Railway Project Facebook Group

Visit our Jordan Reid Model Railway Project Facebook Group page for more information about the progress of our model railway project.

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